Caring for Aging Parents - www.Caregiving.CC
Embrace Caregiving
Tuesday, September 07, 2010
Equipping, Empowering and Encouraging Caregivers
Finding Credible Health-Related Information
 
Contrary to popular belief, websites that end in “.org” are NOT limited to nonprofit organizations. Anyone can buy a domain name ending in “.org”. The only domains that are restricted are those ending in “.edu” (educational institutions) and “.gov” (government organizations). When gathering information on-line, beware. Consider the motivation of the organization offering information. For example:
  • Are they biased?
  • Are they trying to sell you something? 
  • Is the information accurate and based on credible research?
  • Are the information sources cited?
Contact information for select organizations that we have found to offer credible health-related information follows. NOTE:  A new window will open when you click on a link below. The information is categorized as follows:  
  1. Medical Conditions
  2. Prescription Drugs
  3. Aging and Caregiving 
  4. Government Programs & Services
  5. Driving
  6. Nursing Homes & Home Health Care
  7. Local Resources
1. Medical Conditions 
In addition to the organizations listed, there are many other sources of credible information on medical conditions and treatment options. To narrow your search, ask your primary care physician and other health care professionals for recommendations. You might also ask people who have faced similar situations for suggestions.  
 
Information provided by government agencies
 
Information from companies specializing in medical information
Did you know that the health content featured on the websites of many hospitals, pharmaceutical companies, consumer sites (e.g., www.MSN.com, www.Yahoo.com), health insurance providers, and others is often sourced? The information may be presented in such a way that many people may not realize the actual source of the information. Some of the well-known sources of medical information include:
 
Other well-known sources of information include:
  • American Academy of Family Physicians – Offers health information for the whole family. Information is available in English and in Spanish. 
  • Cleveland Clinic – Click on Health Information.
  • Health Insurance Providers (e.g. Anthem, Humana, Wellpoint) – Refer to your mem-bership identification card for contact information.  
  • HealthWeb – Represents a collaborative project of over 20 health sciences libraries.
  • Mayo Clinic – Click on Health Information.
  • Netwellness – Represents a collaborative effort between the University of Cincinnati, the Ohio State University and Case Western Reserve University. In addition to search capability, visitors can also post questions for medical and health experts to answer. 
  • Revolution Health – Offers a variety of conditions & diseases, healthy living and more.   
  • WebMD Inc. – Offers a variety of health and medical information.
Information about specific illnesses and diseases
 
2. Prescription Drugs  
When seeking information on medications, investigate prescription drugs, over-the-counter medications, supplements and natural remedies. The organizations listed provide information to help you understand the purpose, side effects, how medications interact with one another, and potential risks. Your pharmacist might also offer recommendations.  
 
Information provided by government agencies
General Information
 
Clinical Trials
 
Information provided by major pharmaceutical companies
 
Information about drug safety  
 
Information from organizations specializing in prescription drug information
Did you know that the information about prescription drugs, over-the-counter medications, alternative therapy agents and supplements featured on the websites of many pharmacies (e.g., Eckerd Drugs, Rite Aid, WalMart) is often sourced? Some of the well-known sources of medication information include:
 
Information provided by large pharmacies
 
3. Aging & Caregiving    
The following is a listing of websites from reputable organizations providing information on aging, caregiving and related topics. 
  • Administration on Aging – (202) 619-0724 – They offer information and resources on a variety of caregiving and aging-related topics. Click on Elders and Families.
  • Benefits Check-Up – (202) 479-1200 – A service of the National Council on Aging (NCOA), they help qualified people get financial assistance from private and government programs.
  • Center for Aging with Dignity – (513) 558-2428 – The Center is devoted to keeping people SAFE After 60 by advocating for, advancing and developing best-practice programs on the safety and mistreatment of older adults (e.g., Elder Abuse Prevention, Fall Prevention, Medication Safety, Transportation  Safety).   
  • Family Caregiver Alliance – (415) 434-3388 – They offer a variety of fact sheets and information on caregiving, online consultation and more.
  • National Alliance for Caregiving – In addition to their legislative activities, they offer a variety of publications and guides for caregivers.   
  • National Association of Professional Geriatric Care Managers – (520) 881-8008 – They can help you locate a professional care manager who can help you address specific care needs and concerns. 
  • National Center on Elder Abuse – (202) 898-2586 – They offer resources and support for people suspecting elder abuse, neglect, and exploitation.
  • National Family Caregivers Association – (800) 896-3650 – They provide information and education to family caregivers and data from the NFCA’s caregiver member surveys. 
  • National Hospice and Palliative Care Organization – (800) 658-8898 – They offer information to help people with end-of-life planning, advance directives, Hospice, grief and more.
  • National Respite Network – (919) 490-5577 – They help caregivers find temporary relief from their caregiving duties. 
  • Strength for Caring A service of Johnson and Johnson, they offer information on caregiving and related topics.  
  • U.S. Consumer Product Safety Commission – They offer a Home Safety Checklist and other safety tips for older consumers.     
  • Well Spouse Foundation – (800) 838-0879. They provide information to help spouses who are serving as caregiver. 
 
4. Government Programs and Services 
The following is a listing of government organizations offering programs and services available at the federal, state and local level. If you contact an organization that cannot help you, ask them to direct you to someone who can.
 
Federal Government Programs of special interest to older adults
 
State and Local Programs
  • Area Agencies on Aging – A service of the Department of Health and Human Services, their website lists state and local agencies dedicated to helping older adults and their families.  
  • ElderCare Locator/ 800-677-1116. A public service of the U.S. Administration on Aging, visitors can search for information and organizations by zip code, city or county.
 
5. Driving
 
6. Nursing Home & Home Health Care 
 
7. Local resources
Know that local senior guides and websites may only list organizations that pay for an advertisement, placement or have some other type of referral arrangement. One of the most comprehensive listings and best resources for information on programs, services and organizations in your community is your local Yellow Pages telephone directory. If you refer to your local telephone book, some of the section headings you might reference include:
 
Government listings (often color coded in Blue)

  • Drug Hotline
  • Health Department
  • Human Services
  • Medicare
  • Mental Health
  • Nursing Home Licensure & Complaints
  • Senior Citizen Services
  • Social Security
  • Veterans Affairs Information
  • Welfare
 
 
Yellow Pages – Business and Organization listings

  • Alcoholism Information & Treatment Centers
  • Alzheimer’s Resources
  • Ambulance Service
  • Apartments
  • Assisted Living
  • Associations
  • Cancer Resources
  • Cemeteries
  • Clinics
  • Concierge Service
  • Condominiums
  • Cremation Services
  • Disabilities & Special Needs Equipment & Supplies
  • Funeral Directors
  • Funeral Pre-Arrangement Plans
  • Geriatric Services
  • Hearing Aids
  • Home Health Services
  • Hospices
  • Hospital Equipment & Supplies
  • Mental Health Services
  • Monuments
  • Nurses
  • Nursing Home Consultants
  • Nursing Homes
  • Physical Therapists
  • Rehabilitation Services
  • Retirement & Life Care Communities & Homes
  • Senior Citizen Centers
  • Senior Citizens’ Service Organizations
  • Social Service Organizations
  • Wheel Chair Lifts & Ramps
  • Wheelchairs & Scooters – Sales & Service 
 
 
Copyright © 2002-2010 – Charles Puchta - Aging America Resources. All rights reserved. 
For Reprints & Permissions to copy/use any information on this website
CLICK HERE.